Gathercole, KateAlmutairi, Taghrid2024-03-042024-03-042024-03-04https://hdl.handle.net/20.500.14154/71561Autism Spectrum Disorder (ASD), a neurodevelopmental condition characterized by challenges in communication, social interaction, and restricted, repetitive behaviors, exerts multifaceted impacts on both individuals with the condition and their caregivers. For those diagnosed with ASD, the condition significantly shape the daily lives of their families, who shoulder a substantial emotional, practical, and often lifelong burden. The caregiving journey can be both rewarding and demanding, encompassing a broad range of responsibilities. This study delves into the intricate web of experiences, perceptions, and societal reactions confronted by families of children with ASD in Medina, Saudi Arabia. Drawing upon Goffman's "courtesy stigma" theory, the research examines the extent of self-stigma and external stigma, investigating their multifaceted manifestations in this cultural context. Through thematic analysis of in-depth interviews, the study unveils five central themes: Negative Experiences due to Stigma that includes social exclusion, discrimination, isolation, and loneliness; Changes in Societal Attitudes; Emotional and Personal Impact that includes emotional burden, stress, and effects on daily life; Systemic Challenges that arises due to challenges in accessing services; and Support Systems that are being supportive in coping like support from community and family. The findings reveal that families encounter adverse societal responses, leading to isolation, discrimination, and emotional distress. However, the evolving societal awareness of autism in the community offers a glimmer of hope, bridging understanding and acceptance. Amidst challenges, familial and communal support systems emerge as vital pillars, underscoring their significance in navigating the complexities of raising children with ASD. Comparisons with existing literature corroborate and deepen the understanding of these experiences, both within the Saudi Arabian and global contexts. The implications of these findings underscore the urgency for awareness campaigns and education to dispel myths, fostering an inclusive environment for ASD families. The study culminates in recommendations for practical interventions and future research directions to address stigma and enhance the quality of life for these families. Despite its contributions, the research acknowledges its limitations and paves the way for further exploration into specific cities, cultural dimensions, and local contexts to provide a more comprehensive understanding of the challenges faced by families of children with ASD in Saudi Arabia.90enStigmaparentsautismThesis