Saudi Cultural Missions Theses & Dissertations
Permanent URI for this communityhttps://drepo.sdl.edu.sa/handle/20.500.14154/10
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Item Restricted Isolation and Its Impact: Understanding Patient–Caregiver Experiences During Isolation for Haematopoietic Stem Cell Transplantation(Queen's University Belfast, 2024-06-24) Mayan, Soumaya; Martin, DaphneBackground: Haematopoietic stem cell transplantation (HSCT) is a complex procedure requiring long-term preparation. Patients undergoing the procedure have increased risks of developing infections and life-threatening complications, so the standard practice has been to isolate them before and after the procedure. Although isolation in a separate ward helps increase the chances of successful transplantation and survival, it has an immense negative effect on patients’ psychological state. Aim: This study aimed to examine the effects of isolation on patients and their caregivers. Specifically, it focused on the psychological/emotional state, health related quality of life, and coping skills of patients and their families. Methodology: An integrative literature review methodology was used to draw the data for this study. The search was limited to articles published in English in the past decade (September 5, 2013, until present), which focused on the experiences of adult patients/caregivers in the context of HTSC isolation. A thorough literature search helped extract 19 studies which were included in the sample. This approach helped obtain qualitative and quantitative data from different locations. Results: The review showed that isolation has a severe effect on patients and caregivers, leading to stress, anxiety, and depression. It is also associated with extreme uncertainty and the loss of control, which, coupled with a plethora of unpleasant and taxing symptoms, negatively impact health related quality of life. Patients and caregivers were found to demonstrate various coping behaviours, such as communication with friends and family, spending time on hobbies, engaging in religious/ spiritual activities, and others. However, maladaptive coping was also found to be common, which points to the importance of teaching patients and families how to overcome stress. Conclusions: Given the adverse effects of isolation on patients and their families, it is extremely important to provide them with relevant psychological support and resource22 0Item Restricted CAREGIVER BURDEN AND ADAPTATION OF RELATIVES WITH DEMENTIA DURING COVID-19 PANDEMIC(Proquest, 2023-05-15) Omar, Maryam; Bryant, Sharon AThe incidences of dementia are expected to double every 20 years due to an increasingly elderly population. Globally, 50 million people are living with dementia nowadays. The effects of dementia on patients and their families are profound. Hence, caring for a relative with dementia can be quite taxing on caregivers. While dementia caregiver burdens before the COVID-19 pandemic are well-documented, there is a gap in the literature regarding this phenomenon during the pandemic. Thus, it is urgent to fill that gap and investigate the nature and origin of caregiver load during this unique period. Using the Roy Adaptation model (RAM) framework, this convergent, mixed-methods study aims to explore the burden level among informal caregivers of relatives with dementia during the COVID-19 pandemic and discover their adaptation methods. A total of 104 participants were recruited using convenience sampling. The study reported some critical stimuli that significantly appeared to affect the caregivers’ burden and adaptation, which were gender, relationship to the care receiver, and race. Furthermore, the findings of this study suggested that the caregivers of dementia relatives reported higher burden scores during the COVID-19 pandemic than before. The seven themes emerged as daily activities and recreations of caregivers and their care recipients during the pandemic (food and diet, outdoor exercises, indoor activities, sleep and rest, communication, and prevention), and four themes of positive experience during the COVID-19 pandemic (spending more time together, take active care of relatives, strength of family relationship, gratitude and appreciation). The knowledge gained from this study has implications for nursing practice, education, and policy- making. In addition, it will help advise the best care for this vulnerable population to adapt to their caregiving role at the critical time of similar disease outbreak circumstances.34 0