Saudi Cultural Missions Theses & Dissertations
Permanent URI for this communityhttps://drepo.sdl.edu.sa/handle/20.500.14154/10
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Item Restricted Assessing Knowledge, Attitudes, and Practices: The Role of Caregivers in the Oral Health of Adults with Intellectual and Developmental Disabilities(University of Rochester, 2024-05-17) Alqahtani, Nahar; Planerova, Adela; Abdul Basir, Barmak; Planerova, AdelaObjective: This study aims to investigate the influence of caregiver education on attitudes, beliefs, and knowledge regarding oral health care for individuals with intellectual and developmental disabilities (IDD). Methods: Employing a single-arm, prospective design, this research was conducted at the Eastman Institute for Oral Health, University of Rochester Medical Center, with 101 caregivers participating. Caregivers, fluent in English and involved in the oral care of adults with IDD for at least six months, completed a validated, self-administered questionnaire. The questionnaire assessed demographics, oral health knowledge, attitudes, and practices. Data analysis utilized SPSS ver. 21.0, applying the Chi-Square test, independent samples t-test, and ANOVA to explore correlations between caregiver demographics and oral health practices. Results: The study demographic comprised predominantly female caregivers (74.3%), with a significant portion having completed high school or less (67%). Key findings indicated a substantial association between caregivers' education levels and their oral health practices for individuals with IDD. Caregivers with a Bachelor's degree or higher demonstrated a higher likelihood of adhering to recommended oral health practices (p=0.018) and exhibited a deeper understanding of dental health factors. Barriers to effective oral care, including non-cooperative behavior from care recipients and limited resources, were identified, emphasizing the necessity of addressing these challenges through comprehensive strategies. Conclusion: Caregiver education is crucial in determining the quality of oral health care provided to individuals with IDD. This study underscores the need for targeted educational interventions and policy reforms to enhance caregivers' abilities and address existing care delivery challenges. By fostering an environment of informed, engaged caregiving, we can significantly improve oral health outcomes for adults with IDD, advocating for an interdisciplinary approach to achieve an inclusive healthcare ecosystem.23 0Item Restricted Experiences of Relatives in ICU Caregiver Role: Narrative Exploration of Psychosocial Factors Underpinning Their Decision-Making.(Saudi Digital Library, 2023-11-19) Alsubiei, Sarah; Mgawadere, FlorenceBackground: Caring for a patient admitted to the intensive care unit (ICU) may cause significant stress, anxiety, and depression that undermine family members’ ability to participate in healthcare provision. Unfortunately, caregivers’ and family members’ experiences have not been studied well in the scholarly literature, so it is not clear what factors affect their effective involvement in decision-making and how they overcome stress. Therefore, this study aimed to understand psychosocial factors that underpin the decision-making experiences of family caregivers of critically ill patients in intensive care units. Methods: A structured narrative review was conducted using three databases; PubMed, Elsevier, and Willey Online. Key search terms used were: "((family decision) OR (decision-making)) AND (psychosocial factors) AND ((ICU) OR (intensive care units))", "(experiences of relatives) AND ((ICU) OR (intensive care units)) AND ((caregiver role) OR (significant others))", and "(decision-making role OR family decision) AND ((family members) OR (caregivers)) AND ((ICU) OR (intensive care units))". Duplicates were removed manually and all studies that did not meet the review criteria were removed. Results: Forty (40) studies conducted in different settings were included in this review. Caregivers often experienced communication problems and struggled with psychological effects resulting from stress, financial difficulties, and emotional burden of care. Anxiety, post-traumatic stress disorder (PTSD), frustration, helplessness, and burnout, affected caregivers’ decision making. Notably, social support networks, family support, and positive family functioning were found to improve caregivers’ well-being and help them remain resilient and engaged in care. Conclusion: Most studies reported psychological problems that affected caregivers’ participation in decision making on the care of their critically ill relatives. However, social support was not always enough to facilitate caregivers’ decision-making, so it is important to adopt innovative solutions such as a family systems theory, family-centred care, decision aids, and improved communication, among others, to make sure that caregivers are well-informed, supported, and empowered to make the best decisions for their loved ones. Given the lack of overall knowledge on psychological factors underpinning caregivers’ decision-making in ICUs, more research on this topic is strongly recommended.45 0