Saudi Cultural Missions Theses & Dissertations
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Item Restricted The Psychosocial Impact on Families of Paediatric LT-MCS Patients During In- Hospital Bridge to Transplant: A Modified Systematic Review(University of Nottingham, 2024-09) Alawami, Sakinah; Hemingway, PippaIntroduction: End-stage heart failure children waiting for heart transplants have better survival rates with long-term mechanical circulatory support (LT-MCS). However, the shortage of donor hearts prolongs the transplant bridging period, extending hospitalisation, disrupting family life, and adding uncertainty. While a previous mixed-method systematic review has explored the home experience of these families, understanding their in-hospital experiences remains limited. Therefore, this review aims to examine the psychosocial impact on these families during their LT-MCS children’s in-hospital bridged to transplant, illuminating their challenges and resilience. Methods: This review employed the SPIDER framework searching for PubMed, CINAHL, ASSIA, Embase, and ProQuest (dissertations and theses) for English-published and non-published qualitative studies according to the pre-defined inclusion criteria. Findings: Six qualitative studies matched the pre-defined inclusion criteria. The review synthesised four themes using Braun and Clarke reflexive thematic analysis: (1) Commencing the families' journey with LT-MCS discussing the diagnosis and LT-MCS implantation’s impact. (2) Navigating the LT-MCS paediatric patients’ families through Bridging: addressing LT-MCS children-mother role changes, caregiver's daily life, complications, and grief. (3) Crossroads of blessings and challenges: LT-MCS children's families await a new heart, highlighting donor heart uncertainty. (4) The power stations of LT-MCS children’s families focus on supporting systems. After synthesising themes, findings were examined through Dr. Mishel’s Uncertainty in Illness Theory, Theor yielding recommendations aligned with Advanced Nursing Practice's pillars. Conclusion: This systematic review highlights the profound psychosocial impact and uncertain experience on LT-MCS children’s families during diagnosis, hospitalisation, complications, grieving, and the waiting period for a new heart. It calls for urgent tailored educational and supportive interventions by clinicians for sudden and previously diagnosed heart failure children's families, robust policy initiatives, and innovative research. Additionally, it points out the role and potential needs of healthcare providers in helping families mitigate the stresses associated with the in-hospital bridging period.21 0Item Restricted Joint Hypermobility: a survey of knowledge and current practices among Saudi paediatric physiotherapists(Saudi Digital Library, 2023-12-01) Rehbeeni, Omamah; Simmonds, JaneBackground: Physiotherapists play a crucial role in the management of children with joint hypermobility (JH) and symptomatic joint hypermobility (SJH). Therefore, this study aimed to assess knowledge of these conditions among paediatric physiotherapists in Saudi Arabia and to review current practices in terms of the assessment and management of children with JH and SJH. Methods: A cross-sectional study design utilising a previously validated questionnaire was conducted. The questionnaire was distributed online among eligible Saudi paediatric physiotherapists via the Saudi Physical Therapy Association and convenience sampling. The study was between June to July 2023. Results: A total of 69 responses were collected, 28 of which completed the questionnaire. Most participants (79%) had received no undergraduate training in joint hypermobility and related conditions, while 59% of the respondents with postgraduate education had received no training. The mean score of total knowledge about JH and its associated conditions and features was 18.24 out of 41. A significant association was found between the knowledge score and postgraduate training (p < 0.006). Assessment tools for diagnosing JH and related conditions were used by one-third or less of the respondents. Only 32% of respondents were confident with their assessment of this condition, and only 52% of them were confident with their treatment. Conclusion: There is a knowledge gap about JH and SJH among Saudi paediatric physiotherapists. Education and training were shown to improve knowledge scores. Therefore, it is important to address the gap and improve confidence levels through evidence-based education and training.26 0Item Restricted The Effectiveness of Virtual Reality in Reducing Pain Intensity During Wound Dressing Changes in Children and Adolescents with Burn Injuries: A Systematic Review(Saudi Digital Library, 2023-12-01) Alhawiti, Hana; Brindley, AlisonBackground: Children and adolescents who suffer burn injuries often experience pain when their wounds are being dressed which can have an impact on their overall physical and mental well-being. Distraction with Virtual Reality (VR) has emerged as a non-conventional tactic to alleviate pain in different medical settings. The aim of this systematic review is to evaluate the effectiveness of VR in easing pain intensity during wound care procedures like dressing changes in paediatric burns compared to conventional wound care. Methods: A comprehensive search was conducted in the COCHRANE database, CINAHL, PubMed, and Medline to find relevant articles published that examined the effectiveness of using virtual reality as a distraction technique for managing pain during wound dressing changes in children and adolescents with burn injuries. The focus of the systematic review was on reducing the intensity of pain. Data were analysed and synthesized using a systematic review without meta-analysis. Results: A total of 527 articles were identified, with 404 from the COCHRANE Central database and the rest from other databases. After screening and assessing eligibility, 8 studies were included in this systematic review. Initial analysis suggests that VR distraction could effectively lower pain intensity during wound dressing changes for paediatric and adolescent burn patients. However, more investigation is needed to validate these results and ascertain the most suitable application of VR distraction in this group. Conclusion: Virtual reality distraction shows promise as a successful intervention to alleviate pain severity during the process of changing dressings for children and adolescents with burn injuries. This systematic review highlights the need for additional high-quality studies to strengthen the evidence base and provide guidance for the integration of VR distraction into standard wound care protocols.17 0