Saudi Cultural Missions Theses & Dissertations
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Item Restricted Understanding Parental Caregiving for Children with Cerebral Palsy in Saudi Arabia: A Multi-Method Study Combining Insights from a Scoping Review and Qualitative Data(Saudi Digital Library, 2025) Alqahtani, Ashwaq Amer; Afolasade, FakoladeCerebral palsy (CP) is the most common motor disability in childhood, affecting approximately 2-3 per 1,000 live births worldwide. The lifelong nature of CP places significant caregiving responsibilities on families, particularly parents. Understanding parents' experiences and support needs is critical to informing effective interventions and advancing disability research. While CP caregiving has been widely studied, research involving Arab parents of children with CP, particularly in Saudi Arabia, remains scarce. The overarching goal of this thesis was to explore the caregiving experiences of Saudi parents of children with CP and characterize their support needs through a social-ecological lens. This thesis includes two studies, starting with a scoping review that examined existing research on CP caregiving in the Arab contexts, identified gaps in knowledge, and offered recommendations for future studies. Then, a qualitative exploratory descriptive interview study involving 12 Saudi parents from Qassim, Saudi Arabia, aimed to explore their caregiving experiences and characterize their support needs. The scoping review revealed that mothers are predominantly the primary caregivers in Arab contexts, and that caregiver burden is a major concern. However, the qualitative study in Saudi Arabia showed that caregiving responsibilities are shared between both parents, with roles shaped by traditional gender norms. Parents faced significant emotional, physical, material, and informational challenges, with financial strain being particularly pronounced. Barriers to accessing education and health care services further contributed to caregiver stress. However, Islamic spiritual values played a pivotal role in fostering collectivism and community involvement, serving as vital sources of resilience and social support for parents navigating caregiving responsibilities. Overall, the integrated findings showed that effectively supporting Saudi and Arab parents of children with CP depends on understanding their unique experiences and cultural context. To achieve this understanding, families, communities, support organizations, and the government must work together. Future research and program development should consider these contexts to support and effectively address the needs of parents of children with CP in Saudi Arabia.13 0Item Restricted The Effectiveness of Nintendo Wii Training in Improving the Hand Motor Functions of Children and Adolescents With Cerebral Palsy(2023-04-03) Alhenaky, Malak; Jones, UnaBackground: Cerebral palsy (CP) is one of the leading causes of disability among children. Most children and adolescents with CP have impaired hand motor function, which may significantly affect their functional independence and quality of life. Nintendo Wii is a commercial virtual reality (VR) system that is most widely utilised to improve hand motor function in children and adolescents with CP. Several systematic reviews have assessed the effects of training with various VR systems, which differ considerably in their characteristics, but none have focused on Nintendo Wii training (NWT). Aim: To determine the effectiveness of NWT in improving the hand motor functions of children and adolescents with CP. Methods: A comprehensive search was conducted in the CINAHL, AMED, EMBASE, Ovid Emcare, Medline via Ovid and Scopus databases. Only randomised controlled trials (RCTs) that assessed the effectiveness of NWT alone or in combination with conventional therapy (CT) in improving hand motor function, including manual dexterity, strength and hand grasp, in children and adolescents with CP were selected. Two independent reviewers evaluated the methodological quality of these studies and based on the results of a critical appraisal, chose which studies to include in the review. The quality of the studies was evaluated using the Physiotherapy Evidence Database (PEDro) scale. A narrative synthesis was performed to synthesise the data. Results: Five RCTs with a total of 192 participants were included in the review. Three studies were of high quality; the others were of moderate quality. In the included studies, the NWT-CT combination improved grip strength, pinch strength and hand grasp. These improvements were greater than those found with the CT alone. Regarding the effect of NWT on manual dexterity, only the studies that included Tennis and Boxing games showed clinically relevant improvements. Conclusion: Due to the limited number of included studies and their several methodological limitations, insufficient evidence is available to draw definitive conclusions about the effectiveness of NWT in improving the hand motor functions of children and adolescents with CP. Further high-quality studies with larger sample sizes and long-term follow-up are required.19 0Item Restricted Development of a core outcome set for lower limb orthopaedic suregical interventions in ambulant children and young people with cerebral palsy(2023-05-09) Almoajil, Hajar; Dawes, Helen; Toye, Francine; Theologis, Tim; Hopewell, Sally; Saboskbar, AfsieFirst and foremost, I offer my sincerest gratitude to my primary supervisor, Mr. Tim Theologis, for his guidance and support, valuable advice and feedback, for being straight-forward, for not giving up and patiently helping me to stay on the track and unwavering support, in many an hour of self-doubt. I would like to thank him for seeing the potential and believing in me, encouraging me to pursue this body of work. Thank you! I am grateful to my co-supervisors, Professor Helen Dawes, Professor Sally Hopewell and Dr Francine Toye, for offering their expertise, insight, and for their patience, guidance. Thanks must go to Professor Crispin Jenkinson, for his support and contribution and guidance on setting up the project. I am extremely grateful to all advice from members of our Patient and public Involvement group, and the steering committee, ensured that this work focussed on what mattered most to children undergoing lower limb orthopaedic surgery. This project, which I am, always have and always will be passionate about, would not have been possible without the participation of children and young adults with CP, their families and healthcare professionals across the UK and colleagues internationally, who have participated with excitement, wisdom and honesty. I hope that the influences of this research are far-reaching. I am indebted to the Imam Abdulrahman bin Faisal University for funding me to undertake a DPhil program. This decision has made an incredibly positive impact on my life, and I hope, produced work that will benefit children with CP internationally. To my colleagues, Foteini Mavrommati, Stella Koukides, Jerneja Uhan, Norah Almulhem and Wafa Almusallam for their guidance and inspiring me every single time we met through the years in completing this research. I reserve my most heartfelt thanks for my family. My parents and family, for their constant love and support and for believing in me enthusiastically. Most of all, I would like to thank my husband, Abdullah, who has been my biggest supporter, and whose bravery, integrity and resilience are a constant source of inspiration.32 0
